Burn unit care of Stevens Johnson syndrome/toxic epidermal necrolysis: A survey

• We documented the practices of burn centers in the care of patients with acute SJS/TEN.
• Systemic treatment for patients with SJS/TEN is not standardized among burn centers.
• There is disparity in the level of subspecialty care for patients with acute SJS/TEN.

Stevens-Johnson syndrome/toxic epidermal necrolysis (SJS/TEN) is a systemic disease that can be associated with debilitating acute and chronic complications across multiple organ systems. As patients with acute SJS/TEN are often treated in a burn intensive care unit (BICU), we surveyed burn centers across the United States to determine their approach to the care of these patients. The goal of our study was to identify best practices and possible variations in the care of patients with acute SJS/TEN. We demonstrate that the method of diagnosis, use of systemic therapies, and involvement of subspecialists varied significantly between burn centers. Beyond supportive care provided to every patient, our data highlights a lack of standardization in the acute care of patients with SJS/TEN. A comprehensive guideline for the care of patients with acute SJS/TEN is indicated.