کد مقاله | کد نشریه | سال انتشار | مقاله انگلیسی | نسخه تمام متن |
---|---|---|---|---|
5602559 | 1405392 | 2017 | 5 صفحه PDF | دانلود رایگان |
عنوان انگلیسی مقاله ISI
A Web-Based Registry for Familial Hypercholesterolaemia
ترجمه فارسی عنوان
یک رجیستری مبتنی بر وب برای هیپرکلسترولمی خانوادگی
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کلمات کلیدی
رجیستری بیماری، هیپرکلسترولمی خانوادگی، متقابل مدل مراقبت، متن باز، چارچوب رجیستری،
موضوعات مرتبط
علوم پزشکی و سلامت
پزشکی و دندانپزشکی
کاردیولوژی و پزشکی قلب و عروق
چکیده انگلیسی
Familial hypercholesterolaemia (FH) is the most common and serious monogenic disorder of lipoprotein metabolism that leads to premature coronary heart disease. Patients with FH are often under-treated, and many remain undiagnosed. The deployment of the FH Australasia Network Registry is a crucial component of the comprehensive model of care for FH, which aims to provide a standardised, high-quality and cost-effective system of care that is likely to have the highest impact on patient outcomes. The FH Australasia Network Registry was customised using a registry framework that is an open source, interoperable system that enables the efficient customisation and deployment of national and international web-based disease registries that can be modified dynamically as registry requirements evolve. The FH Australasia Network Registry can be employed to improve health services for FH patients across the Australasia-Pacific region, through the collation of data to facilitate clinical service planning, clinical trials, clinical audits, and to inform clinical best practice.
ناشر
Database: Elsevier - ScienceDirect (ساینس دایرکت)
Journal: Heart, Lung and Circulation - Volume 26, Issue 6, June 2017, Pages 635-639
Journal: Heart, Lung and Circulation - Volume 26, Issue 6, June 2017, Pages 635-639
نویسندگان
Kathryn R PhD, Jing PhD, Leanne BAppSc, Caroline E BSc, PhD, Hugh JS BSc, PhD, Adam A BSc, Frank M van PhD, FAHA, Gerald F MD, DSc, PhD, FRACP, Matthew I PhD,