Article ID | Journal | Published Year | Pages | File Type |
---|---|---|---|---|
10212358 | European Journal of Medical Genetics | 2018 | 16 Pages |
Abstract
The network has received the European Commission's support since its inception. In order to offer a sustainable solution for the continuation of EUROCAT activities, it was agreed that EUROCAT would become part of the EU RD Platform. In 2015, the European level-coordination activities and the Central Database were transferred to the DG JRC, where the JRC-EUROCAT Central Registry is now located. This paper describes the functioning of EUROCAT in the new setting, and gives an overview of the activities and the organisation of the JRC-EUROCAT Central Registry.
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Authors
Agnieszka Kinsner-Ovaskainen, Monica Lanzoni, Ester Garne, Maria Loane, Joan Morris, Amanda Neville, CiarĂ¡n Nicholl, Judith Rankin, Anke Rissmann, David Tucker, Simona Martin,