From consent to institutions: Designing adaptive governance for genomic biobanks

► Many biobanks are not able to meet traditional informed consent requirements or guarantee privacy protection. ► A loosening of informed consent and privacy requirements should be matched by an increased emphasis on good governance. ► This paper suggests four principles that should be taken into account in constructing biobanks governance. ► Concrete implementation of the principles is illustrated using the example of a particular biobank, the BC Generations Project.