Article ID | Journal | Published Year | Pages | File Type |
---|---|---|---|---|
10486386 | Value in Health | 2011 | 5 Pages |
Abstract
We conclude that the measures introduced in 2005 significantly improved the value of the information in the registry, which has contributed greatly to our understanding of patients' real-world experience with enzyme replacement therapy for Fabry disease.
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Authors
Joe T.R. MD, PhD, Roberto MD, PhD, Gere MD, Perry M. MD, Guillem MD, PhD, Elizabeth MSc, Maria MSc, Michael MD, FOS Investigators FOS Investigators,