Article ID Journal Published Year Pages File Type
13466876 ALTER - European Journal of Disability Research / Revue Européenne de Recherche sur le Handicap 2019 6 Pages PDF
Abstract
In this short article, we provide a commentary on Cyril Desjeux' article (“Care” made for disabled persons: What are the ethical and power issues?). We return here to several questions raised by his article. The first concerns the various ways of qualifying an act as “help”, “care” or “cure”, the tensions that can result from this process, and the issues raised by these qualifications for the actors. In particular, we insist on the relationship between this process of qualification and professional issues, as it can challenge the boundary between medical and non-medical professions. Secondly, we situate the debates addressed by Cyril Desjeux in recent developments concerning the status of sick and disabled people, the promotion of their autonomy and their participation in decisions that concern them. We draw the reader's attention to the unexpected and potential negative effects of the willingness to involve disabled people, when this will turns into a normative directive. Finally, we emphasize the originality of Cyril Desjeux' article in Alter journal. It presents “research-in-action” that goes beyond the strict academic framework.
Related Topics
Social Sciences and Humanities Social Sciences Health
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