| Article ID | Journal | Published Year | Pages | File Type |
|---|---|---|---|---|
| 2631985 | Journal of Neonatal Nursing | 2007 | 6 Pages |
The TOBY Study is a randomised controlled trial that recruited term babies with neonatal encephalopathy from December 2002 for 4 years. Assessment of the baby, obtaining informed consent from parents and allocation of intensive care treatment with cooling or without cooling had to be completed by 6 h of age. Parents who agreed to enter their baby into the TOBY Study had been through an extremely stressful experience, having had an unexpectedly complicated birth that resulted in a very sick baby. In order to facilitate parents of TOBY babies contacting each other, BLISS (The Premature Baby Charity) agreed to host a message board for TOBY parents as part of their established online message board system. This article describes how the need for such a facility was identified, how it became a reality and the impact of the message board on those who have chosen to use it.
