Article ID | Journal | Published Year | Pages | File Type |
---|---|---|---|---|
2663973 | Journal of Pediatric Nursing | 2013 | 9 Pages |
Abstract
Patients treated with recombinant human growth hormone (rhGH) for growth hormone disorders follow a challenging treatment schedule. This study assessed patient and caregiver experiences with rhGH therapy treatment regimens. Patients 13 years or older with growth hormone deficiency and caregivers completed Web-based surveys. A total of 61 patients and 239 caregivers participated. Storage of rhGH was considered burdensome by more than a third. More than 51% considered storage “somewhat more” to “much more of a burden” relative to the burden while not traveling. “Away from home or traveling” was the most frequently endorsed reason for missing a dose. rhGH treatment while traveling is challenging because of rhGH storage burden.
Keywords
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Authors
Dianne Kremidas, Tami Wisniewski, Victoria M. Divino, Kaysen Bala, Maryann Olsen, John Germak, Mark Aagren, Natalia Holot, Won Chan Lee,