Article ID | Journal | Published Year | Pages | File Type |
---|---|---|---|---|
2665716 | Journal of Pediatric Nursing | 2012 | 10 Pages |
Abstract
This qualitative phenomenological study explored mothers' experiences of caring for a child with complex needs. After ethical approval was obtained, data were collected through 11 diaries and 48 interviews with 17 mothers in Ireland. Caring for a child with complex needs involves the delivery of care in an inside world of the home, the world outside the home, and a “going-between” world. Caregiving, 1 of 8 closely linked dimensions, is presented, including its 4 categories. These are normal mothering, technical caregiving, preemptive caregiving, and individualized caregiving. Professionals require a greater understanding of the experiences of mothers caring for children with complex needs at home.
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Authors
Honor M. Nicholl, Cecily M. Begley,