Patient and caregiver perspectives on seizure prediction

One of the goals of the Fourth International Workshop on Seizure Prediction was to provide an opportunity for patients with epilepsy and their caregivers to voice their perspectives on seizure prediction and related matters toward the goal of influencing the design of solutions. In an attempt to fulfill this goal, a survey of patients and caregivers, who often make or influence patient choices, was conducted on issues pertaining to living with epilepsy, epilepsy treatments, seizure prediction, and the use of implantable devices for the control of seizures. The results of this survey are reported here.

Research Highlights►89 epilepsy patients and caregivers responded to survey. ►Strong interest in prediction of seizures. ►Preferred length of warning time was 3 to 5 minutes. ►Reluctance to participate in clinical trials.