Development and utilization of the patient knowledge questionnaire on botulinum toxin use in movement disorders

Following a pilot study, the 28-item Patient Knowledge Questionnaire on Botulinum Toxin Use in Movement Disorders (PKQ-BMD) was utilized to assess efficacy of current educational tools by comparing scoring of patients to that of the general population, as well as to identify information resources, target demographics for education, and key counseling topics. Of the 109 participants, the number of correct answers was higher in the patient group, while the number of incorrect answers was low in both groups. Education was the only demographic factor which affected the total score. The primary source of patient information was their neurologist, and “adverse effects” was perceived as the most important educational topic. We conclude that the PKQ-BMD is a valuable instrument for knowledge assessment, as well as a tool for developing more effective patient resources.