| Article ID | Journal | Published Year | Pages | File Type |
|---|---|---|---|---|
| 3079221 | Neuromuscular Disorders | 2015 | 12 Pages |
Abstract
•Paradigm shift – seeing DMD as a childhood onset chronic disease.•Lack of knowledge outside specialized centres on the basic areas of care.•In transition to adult care, co-ordination is key.•People with DMD wish to be partners in addressing care issues.
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Authors
Jes Rahbek, Birgit F. Steffensen, Kate Bushby, Imelda J.M. de Groot,