Article ID Journal Published Year Pages File Type
3814612 Patient Education and Counseling 2006 5 Pages PDF
Abstract

ObjectiveThe study examined the content and frequency of messages to an Internet support group, using a conceptual framework based on support-giving and emotional work. The main questions addressed concerned what correspondents seem to be gaining from their involvement and whether the high-frequency correspondents differ motivationally from the lower-frequency correspondents.MethodsMessages to an Internet support group for women with breast cancer were collected over 12 months. The number of contributions written by individual correspondents could be determined. Messages were reliably coded for their main themes in terms of seeking or providing support.ResultsThe majority of correspondents (94%) wrote fewer than 10 messages. Two high-frequency correspondents emerged whose messages significantly less often referred to seeking and more often to providing support than did the messages of the less-frequent correspondents. These volunteer emotion workers both reported gaining personal satisfaction from their role.ConclusionThe high-frequency correspondents act as informal volunteer emotion workers for the other users, and valuably supplement the role of the group's initiators. Further research is needed on how to amplify the psychological rewards for volunteer emotion workers in online support groups for adults with cancer.Practice implicationsVolunteer assistants in electronic groups may be crucial to the sustainability of online support initiatives.

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