Article ID | Journal | Published Year | Pages | File Type |
---|---|---|---|---|
5114818 | Health & Place | 2017 | 7 Pages |
Abstract
This paper presents research findings that advance knowledge around the power and agency families with children with complex care needs (CCN). Our conceptual framework uses concepts from geography towards situating the experiences and social realities of family carers within the 'embodied space of care'. The data originate from a longitudinal qualitative study of Canadian families with children with CCN. Findings reveal that interactions and decision-making processes relating to health and everyday life were complex and socially interconnected, and emphasize the need for provisions for family-based decision-making and enhanced social inclusion of families and the importance of the renegotiation of power.
Related Topics
Health Sciences
Medicine and Dentistry
Public Health and Health Policy
Authors
Roberta L. Woodgate, Melanie Zurba, Marie Edwards, Jacquie D. Ripat, Gina Rempel,