Article ID | Journal | Published Year | Pages | File Type |
---|---|---|---|---|
5566135 | Women and Birth | 2016 | 6 Pages |
Abstract
There is a need to improve the family-centeredness of care when dysmelia is identified. Offering signposting information to relevant third-sector organisations may increase parent satisfaction and address parent preferences. These findings could have implications for parents of children with other rare diseases identified in maternity services.
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Authors
Judith Johnson, Geoff Adams-Spink, Tobias Arndt, Dileep Wijeratne, Jane Heyhoe, Peter Taylor,