| Article ID | Journal | Published Year | Pages | File Type |
|---|---|---|---|---|
| 5717213 | Anales de Pediatría | 2017 | 9 Pages |
Abstract
The implementation of the EuCHS Registry in Spain has identified some relevant issues for optimising healthcare, such as the importance of genetic study for diagnosis and assessment of severity, the high frequency of eye disease and educational reinforcement, as well as some limitations in ventilatory techniques.
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Authors
MarÃa Angeles GarcÃa Teresa, Raquel Porto Abal, Silvia RodrÃguez Torres, Diego GarcÃa Urabayen, Silvia GarcÃa MartÃnez, Ha Trang, Angel Campos Barros, Grupo Español de Trabajo del SHCC Grupo Español de Trabajo del SHCC, Ana Llorente de la Fuente,