Article ID | Journal | Published Year | Pages | File Type |
---|---|---|---|---|
5824462 | Clinical Therapeutics | 2016 | 13 Pages |
Abstract
Effective recruitment for clinical studies in rare diseases requires a truly committed and engaged study team, as well as the necessary resources to overcome the multitude of barriers that families face. A clearly delineated recruitment plan, developed together with families, should be the standard operating procedure during clinical trial development. Protocols utilizing direct family-centered strategies for providing information and for recruiting research participants in studies in rare diseases are essential.
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Authors
Roxanna M. PhD, OTR/L, Lauren P. MS, CGC, Kristin L. MS, CGC,