| Article ID | Journal | Published Year | Pages | File Type |
|---|---|---|---|---|
| 5870540 | Journal of Pediatric Nursing | 2015 | 9 Pages |
Abstract
This article presents an original study commissioned by the UK charity, Together for Short Lives which explored children and young people up to 25Â years of age with life-threatening/limiting conditions and their families. Using Appreciative Inquiry and framework analysis, qualitative work sought to explore perceived met and unmet needs of services and care. Fifty-one families were interviewed from one UK area, 18 of which were children/young people up to 25Â years old. Findings indicated that children and their families felt medical/nursing needs were well met but provision was needed for broader financial, social and emotional support alongside more responsive specialist therapies.
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Authors
Jane BSc, MA, PhD, Jasveer BSc, Nicky BSc, Christopher PhD, Anne PhD, Lizzie Chambers, Erica MEd, MA,