| Article ID | Journal | Published Year | Pages | File Type |
|---|---|---|---|---|
| 6014090 | Epilepsy & Behavior | 2011 | 5 Pages |
My Epilepsy Diary is a free Web-based application on the public website epilepsy.com, available for patients to track epilepsy and to aid clinicians with data-based, individualized management. The first aim of this descriptive study was to outline electronic diary functions. Second, the study retrospectively profiled a large cohort of 2010 calendar year diary users including demographics, seizure types, temporal distribution of seizures, triggers, and use and side effects of antiepileptic drugs (AEDs). A total of 1944 users provided demographic information and 1877 recorded seizure data. Most (64%) users were women. Average age was 29.9 ± 16.0 years. A total of 70,990 seizure entries and 15,630 AED entries were logged. Events were apportioned as 79% seizures and 21% seizure clusters. Specific AEDs were detailed in 7331 entries: monotherapy was used in 18% and polytherapy in 82%. Mood-related side effects were most commonly reported in 19% of 1027 users.
⺠The typical diary user was a middle-aged, single or divorced, high school graduate. ⺠Women held 64% of accounts. ⺠Seizures constituted 79% whereas seizure clusters accounted for 21% of events. ⺠Thirty-four percent of generalized seizures clustered in the early morning, whereas partial seizures did not.
