“I suddenly felt I'd aged”: A qualitative study of patient experiences of polymyalgia rheumatica (PMR)

•The 5 main themes were: pain, stiffness and weakness, disability, treatment and disease course, experience of care and psychological impact.•Some aspects of patients' experiences challenge conventional understanding of PMR.•A conceptual framework was developed from the interlinked themes and subthemes which will be used to develop a patient reported outcome measure for PMR.

ObjectivesTo explore patient experiences of living with, and receiving treatment for, PMR.MethodsSemi-structured qualitative interviews, with 22 patients with PMR recruited from general practices in South Yorkshire. Thematic analysis using a constant comparative method, ran concurrently with the interviews and was used to derive a conceptual framework.Results5 Key themes emerged highlighting the importance of: (1) pain, stiffness and weakness, (2) disability, (3) treatment and disease course, (4) experience of care, (5) psychological impact of PMR. Patients emphasised the profound disability experienced that was often associated with fear and vulnerability, highlighting how this was often not recognised by health care professionals. Patients' experiences also challenge medical convention, particularly around the concept of 'weakness' as a symptom, the use of morning stiffness as a measure of disease activity and the myth of full resolution of symptoms with steroid treatment. Treatment decisions were complex, with patients balancing glucocorticoid side effects against persistent symptoms.ConclusionsPatients often described their experience of PMR in terms of disability rather than focussing on localised symptoms. The associated psychological impact was significant.Practice implicationsRecognising this is key to achieving shared understanding, reaching the correct diagnosis promptly, and formulating a patient-centred management plan.