| Article ID | Journal | Published Year | Pages | File Type |
|---|---|---|---|---|
| 6848258 | Research in Developmental Disabilities | 2018 | 9 Pages |
Abstract
and Implications Although QoL was highly important during EoLDM for children with PIMD, parents and physicians did not fully explore the elements that contribute to the child's QoL when they made EoLDs. We recommend the development of a communication tool that will help parents and physicians discuss elements that contribute to QoL and the consequences these elements have for upcoming decisions.
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Authors
I.H. Zaal-Schuller, D.L. Willems, F.V.P.M. Ewals, J.B. van Goudoever, M.A. de Vos,