Article ID | Journal | Published Year | Pages | File Type |
---|---|---|---|---|
7329721 | Social Science & Medicine | 2016 | 31 Pages |
Abstract
Our study illustrates that for children and adolescents, managing others' knowledge about their illness has important implications for illness identity management. We argue that knowledge of how children with IBD make disclosure decisions is an important part of understanding the social experience of having IBD, and in creating environments that allow them to adapt to life with IBD. Our study clearly highlights the need for specific programs to be implemented to normalize IBD and to create supportive environments for children and adolescents diagnosed with IBD.
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Authors
Claudia Barned, Alain Stinzi, David Mack, Kieran C. O'Doherty,