| Article ID | Journal | Published Year | Pages | File Type |
|---|---|---|---|---|
| 8684457 | European Journal of Paediatric Neurology | 2018 | 7 Pages |
Abstract
Parents advised healthcare professionals to increase their disease-specific knowledge, to treat the parents as experts on their child, and to treat the family with respect, particularly in situations where the child's case is used as an opportunity to improve healthcare professionals' competence. Increased practical support in daily life and a case coordinator is also among parents' advice to healthcare professionals.
Keywords
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Developmental Neuroscience
Authors
Elin Hjorth, Ulrika Kreicbergs, Thomas Sejersen, Malin Lövgren,