| Article ID | Journal | Published Year | Pages | File Type |
|---|---|---|---|---|
| 8689852 | Neuromuscular Disorders | 2018 | 24 Pages |
Abstract
- International CIDP registries were compared to assess infrastructure and collected clinical data, diagnostic data and biomaterials to enhance future research and improve standards of care in CIDP.
- Consensus was reached on inclusion criteria, a core set of variables at baseline, follow-up frequency, a minimal outcome set during follow-up, standardising the collection of biomaterials and ownership of data and biomaterials.
- Task force was formed to harmonize the current registry protocols and develop INCbase as a central database.
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Authors
Filip Eftimov, Carina Bunschoten, Yusuf Rajabally, Luis Querol,