Article ID | Journal | Published Year | Pages | File Type |
---|---|---|---|---|
8690383 | Pediatric Neurology | 2018 | 26 Pages |
Abstract
Patients with more severe clinical features experience a lower quality of life. Our study further highlights the importance of addressing both physical and psychosocial issues and discussing perception of quality of life with both parents and children. A larger multicenter prospective study will be needed to further define the burden of these diseases and to identify modifiable factors.
Related Topics
Life Sciences
Neuroscience
Developmental Neuroscience
Authors
Amytice Mirchi, Félixe Pelletier, Luan T. Tran, Stephanie Keller, Nancy Braverman, Davide Tonduti, Adeline Vanderver, Amy Pizzino, Marie-Emmanuelle Dilenge, Chantal Poulin, Michael Shevell, Annette Majnemer, Guillaume Sébire, Myriam Srour,