Article ID | Journal | Published Year | Pages | File Type |
---|---|---|---|---|
8769980 | American Journal of Kidney Diseases | 2018 | 9 Pages |
Abstract
ACP provides patients with ESRD and their caregivers a conduit for accepting and planning for impending death and to express treatment preferences based on self-dignity and value of living. However, ACP can be considered taboo, may require caregivers to overcome personal and decisional conflict, and may be complex if patients and caregivers are unable to accept the reality of the patient's illness. We suggest that ACP facilitators and clinicians make ACP more acceptable and less confrontational to patients and caregivers and that strategies be put in place to support caregivers who may be experiencing overwhelming grief or who have conflicting goals, particularly when they are called on to make end-of-life decisions.
Keywords
advance care planning (ACP)nephrology trainingDoctor-patient communicationMedical futilityChronic kidney disease (CKD)Patient preferencesInformed decision-makingShared decision makingConservative treatmentAdvance directivesSupportive careconservative careInterviewsSemi-structured interviewschronic renal insufficiencyNephrologyEnd-of-life
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Authors
Marcus Sellars, Josephine M. Clayton, Rachael L. Morton, Tim Luckett, William Silvester, Lucy Spencer, Carol A. Pollock, Rowan G. Walker, Peter G. Kerr, Allison Tong,