| Article ID | Journal | Published Year | Pages | File Type |
|---|---|---|---|---|
| 8819572 | Journal of Cystic Fibrosis | 2018 | 8 Pages |
Abstract
Cystic Fibrosis (CF) patient registries are valuable data sources for researchers studying the natural history, treatment paradigms, and longâterm health outcomes of individuals with CF. In this review, we discuss the role of CF patient registries in facilitating comparative effectiveness research, particularly evaluating therapies and variation in health care delivery. We also discuss the limitations of registryâbased research, particularly indication bias, as well as statistical methods that can be used to address these issues.
Keywords
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Authors
Elliott C. Dasenbrook, Gregory S. Sawicki,