Article ID | Journal | Published Year | Pages | File Type |
---|---|---|---|---|
8819622 | Journal of Cystic Fibrosis | 2018 | 26 Pages |
Abstract
In continuing to give a broad overview of the standards expected for newborn screening, diagnosis, preventative treatment of lung disease, nutrition, complications, transplant/end of life care and psychological support, this consensus on best practice is expected to prove useful to clinical teams both in countries where CF care is developing and those with established CF centres. The document is an ECFS product and endorsed by the CF Network in ERN LUNG and CF Europe.
Keywords
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Authors
Carlo Castellani, Alistair J.A. Duff, Scott C. Bell, Harry G.M. Heijerman, Anne Munck, Felix Ratjen, Isabelle Sermet-Gaudelus, Kevin W. Southern, Jurg Barben, Patrick A. Flume, Pavla Hodková, Nataliya Kashirskaya, Maya N. Kirszenbaum, Sue Madge,