Article ID | Journal | Published Year | Pages | File Type |
---|---|---|---|---|
8964805 | Journal of Cystic Fibrosis | 2018 | 7 Pages |
Abstract
Patient registries provide clinicians, patients and families with the ability to track important health outcomes at a population, cystic fibrosis (CF) center, and patient level. International quality improvement (QI) work driven by registries has been effective at improving the health and the care delivered to the individual patient. In this review, we examine the role CF registries have played in the QI process over the years and discuss the inherent strengths and limitations that exist when using registry data for this purpose.
Related Topics
Health Sciences
Medicine and Dentistry
Pulmonary and Respiratory Medicine
Authors
Kieran McIntyre, Dominique Pougheon Bertrand, Gilles Rault,