La plainte familiale dans la démence d'Alzheimer

Family caregivers'complaints facing demented patients are the result of complex problems focusing behind the patients'situation. Caregivers must cope with cost induced by the disease, burden due to patients'loss of autonomy and behaviour disorders and their own frailty, being often aged and alone. These points underline family's causes of suffering and trigger his loneliness. Alzheimer's disease results in a loss of relationships where acquired semantic difficulties due to a progressive aphasia are associated with the shrinking semiotic components at stake during human exchanges. Caregivers expect external compensation out of their family but stall on a lack of respite and of availability on one hand, and on a weak social and associative support on the other hand. By the way, formal carers are often pointed out as scapegoat of the family exhaustion consequences even though they have no responsibility on it. Some aspects of family complaints are illustrated with data from the Pixel study.