Article ID | Journal | Published Year | Pages | File Type |
---|---|---|---|---|
10832604 | Molecular Genetics and Metabolism | 2013 | 6 Pages |
Abstract
Management of PKU is associated with a considerable time burden for both caregivers of children with PKU and adult patients. Caregivers of PKU-affected children reported a significantly higher time burden than adult patients. The OOPC of caregivers and patients was mainly driven by the expenditure on low protein food.
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Authors
Indra Eijgelshoven, Serwet Demirdas, T. Alexander Smith, Jeanni M.T. van Loon, Sabine Latour, Annet M. Bosch,