| Article ID | Journal | Published Year | Pages | File Type |
|---|---|---|---|---|
| 7520269 | Journal of Clinical Epidemiology | 2016 | 8 Pages |
Abstract
We present several recommendations to assist national cystic fibrosis registries in calculating and reporting the median age of survival in a standardized fashion. It is imperative to state the statistical method used as well as the proportion lost to follow-up and the treatment of missing data and transplanted patients. Registries must be diligent in their data collection as incomplete data can lead to overestimation and underestimation of survival.
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Authors
Jenna Sykes, Sanja Stanojevic, Christopher H. Goss, Bradley S. Quon, Bruce C. Marshall, Kristofer Petren, Josh Ostrenga, Aliza Fink, Alexander Elbert, Anne L. Stephenson,