Ethics and Big Data in health

We postulate that an important catalyst that will further shift this debate from its traditional contours would be to activate the “right to science” as enshrined in international law. Of note, the Global Alliance for Genomics and Health has developed a Framework for Responsible Sharing of Genomics and Health-Related Data based on that human right. Similarly, recent guidelines from the Council for International Organizations of Medical Sciences and the Organisation for Economic Co-operation and Development, as well as from the American College of Medical Genetics and Genomics contain provisions that promote data sharing indicating that data intensive science may gradually come to be founded on a more communal ethos.