Article ID | Journal | Published Year | Pages | File Type |
---|---|---|---|---|
7529828 | Zeitschrift für Evidenz, Fortbildung und Qualität im Gesundheitswesen | 2016 | 9 Pages |
Abstract
Many of the identified deficits have already been addressed in the German national plan of action for people affected by rare diseases. Furthermore, newly discovered deficits have been evaluated. The German government implemented healthcare structures to improve healthcare services for people with rare diseases. However, budget deficits for specialized structures have occurred inhibiting the expansion of healthcare services. Moreover, many patients need systemic treatment requiring the further development of interdisciplinary care.
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Authors
Frédéric Pauer, Uljana Pflaum, Verena Lührs, Martin Frank, J.-Matthias Graf von der Schulenburg,