کد مقاله کد نشریه سال انتشار مقاله انگلیسی ترجمه فارسی نسخه تمام متن
2646821 1138919 2014 7 صفحه PDF ندارد دانلود رایگان
عنوان انگلیسی مقاله
A tool to aid talking about dementia and dying – Development and evaluation
ترجمه فارسی عنوان
ابزاری برای کمک به صحبت در مورد زوال عقل و در حال مرگ - توسعه و ارزیابی
کلمات کلیدی
زوال عقل؛ رویکرد تسکین دهنده؛ ارتباطات؛ مراقبت های سالم؛ توسعه ابزار
Dementia; Palliative approach; Communication; Aged care; Tool development
موضوعات مرتبط
علوم پزشکی و سلامت پزشکی و دندانپزشکی سیاست های بهداشت و سلامت عمومی
چکیده انگلیسی

SummaryBackgroundHealth professionals often avoid talking about death and dying with patients and relatives, and this avoidance is compounded in cases of dementia by lack of knowledge of trajectory and prognosis. Unfortunately, this impacts on care, with many terminally ill dementia clients receiving inadequate palliation and excessive intervention at end-of-life. This study developed and evaluated a tool to facilitate conversations about death and dying in aged care facilities.MethodsThis study utilised available best-practice evidence, feedback from aged care facility nursing and care staff and specialist input to develop the ‘discussion tool’, which was subsequently trialled and qualitatively evaluated, via thematic analysis of data from family interviews and staff diaries. The study was part of a larger mixed method study, not yet reported. The tool provided knowledge and also skills-based ‘how to’ information and specific examples of ‘what to say’.ResultsThe tool facilitated a more open dialogue between dementia palliation resource nurses (a role specifically developed during this project) and family members. Both resource nurses and family members gained confidence in discussing the death of their relative with dementia, and in relevant cases discussed specific decisions around future care. Family members and nurses reported satisfaction with these discussions.ConclusionProviding specific skills-based support, such as the ‘discussion tool’ can help staff to gain confidence and change practice in situations where unfamiliar and uncomfortable practices might normally be avoided. As our populations age, health professionals will increasingly need to be able to openly discuss care options towards end-of-life.

ناشر
Database: Elsevier - ScienceDirect (ساینس دایرکت)
Journal: Collegian - Volume 21, Issue 4, December 2014, Pages 337–343
نویسندگان
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