کد مقاله | کد نشریه | سال انتشار | مقاله انگلیسی | نسخه تمام متن |
---|---|---|---|---|
5691009 | 1410098 | 2017 | 8 صفحه PDF | دانلود رایگان |
عنوان انگلیسی مقاله ISI
Polykystose rénale : analyse des discussions des e-patients sur la blogosphère publique
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موضوعات مرتبط
علوم پزشکی و سلامت
پزشکی و دندانپزشکی
بیماریهای کلیوی
پیش نمایش صفحه اول مقاله
چکیده انگلیسی
The goal this study was to understand the preoccupations of e-patients with Autosomal Dominant Polycystic Kidney Disease (ADPKD), through their discussions on social networks, and to compare them with those of members of a specialized association. We collected and analyzed all messages containing an unequivocal expression of the pathology (polycystic kidney disease, PKD, ADPKD, etc.) available on public forums on the French Internet and all french-language messages posted on the forum of the patient group Association Polykystose-France (PKD-France) during 2Â years. The automated processing of messages (extraction of themes), using a referential associating each theme with a variety of expressions, allowed classification in different thematic families. 8494Â themes were extracted from 764Â messages sent by 329Â different users on 68Â public forum websites. The main thematic families were treatments (17%), pathology (16%), signs and symptoms (13%), feelings (11%), healthcare system (7%) and patient life (7%). On the association's forum, 345Â messages were sent by 57Â different members. The thematic richness was equivalent (number of themes per message: 10.2 versus 11.1 respectively), with 3517Â themes, but the thematic families corresponded more to the emotional aspects and daily problems: Feelings (15.5%) came before treatment (14.5%), then anatomy (9%) before the healthcare system (8%) and pathology (7%). Knowing the e-patients' views expressed on the internet will enable physicians to respond to patients real expectations and correct erroneous perceptions. As for the patients, they will know the leading sites of opinion, shared by their peers.
ناشر
Database: Elsevier - ScienceDirect (ساینس دایرکت)
Journal: Néphrologie & Thérapeutique - Volume 13, Issue 4, June 2017, Pages 220-227
Journal: Néphrologie & Thérapeutique - Volume 13, Issue 4, June 2017, Pages 220-227
نویسندگان
Corinne Lagrafeuil, Mélanie Hueber, Xavier Magnien, Thierry Baroghel, Laurent Lecardeur, Thierry Marquet,