Evaluating racial/ethnic variations in outpatient epilepsy care

This study evaluated the quality of epilepsy care in an ambulatory population of a major medical center and determined if there were any racial/ethnic variations. The well-established 'Quality Indicators in Epilepsy Treatment (QUIET)' study dataset was used. Medical record, phone interview, and mail-out survey data of 311 patients with epilepsy were linked and analyzed. Evaluation of care from provider and patient perspectives was performed. Overall, the patients with epilepsy received 40.9% of QI recommended care. The black patients were more likely to receive 50% or more QI recommended care compared with non-Hispanic whites (odds ratio [OR] = 2.16, 95% confidence interval [CI] 1.09-4.27). Black patients scored significantly worse than non-Hispanic whites for two patient-reported measures - perceived racial/ethnic disparities (OR = 3.14, 95% CI 1.15-8.53) and difficulties getting follow-up appointments (OR = 3.37, 95% CI 1.55-7.32). The results indicate the need to evaluate both provider- and patient-centered measures in quality-of-care studies in disparities research.

► We evaluated the quality of epilepsy care for possible racial/ethnic variations. ► We used validated quality indicators (QIs) and patient reports. ► Overall, patients with epilepsy received 40.9% of QI recommended care. ► Black patients more likely received QI recommended care than non-Hispanic whites. ► Findings highlight importance of patient-centric approach in disparities research.