Engaging stakeholders into an electronic patient-reported outcome development study: On making an HIV-specific e-PRO patient-centered

Results emphasize the lived experience of managing barriers and its complexity. They suggest the new e-PRO should accommodate patient diversity, contextualize scores longitudinally, and address the personal significance of individual barriers (e.g., distressfulness) beyond their mere presence. These initial results and the opportunities presented by our long-term engagement initiatives should ensure the production of a useful and used patient-centered e-PRO.