کد مقاله کد نشریه سال انتشار مقاله انگلیسی ترجمه فارسی نسخه تمام متن
2649570 1139263 2015 8 صفحه PDF ندارد دانلود رایگان
عنوان انگلیسی مقاله
Living with a high-grade glioma: A qualitative study of patients' experiences and care needs
ترجمه فارسی عنوان
زندگی با گلیومای درجه بالا: یک مطالعه کیفی از تجربیات و نیازهای مراقبت از بیماران
کلمات کلیدی
تومور مغزی؛ گلیوم درجه بالا؛ تجربه بیمار؛ تحقیق کیفی
Brain tumor; High-grade glioma; Patient experience; Qualitative research
موضوعات مرتبط
علوم پزشکی و سلامت پزشکی و دندانپزشکی تومور شناسی
چکیده انگلیسی

PurposePatients with high-grade glioma (HGG) face debilitating symptoms and a poor prognosis. The aims of this study were to better understand how patients with HGG experience life with a brain tumor, and to explore their professional care needs.MethodsWe conducted a qualitative research of HGG patients' experiences using semi-structured interviews and using a Grounded Theory approach. Participants were recruited during patients' hospital visits for treatment or follow-up at the University Hospitals Leuven, Belgium. Seventeen HGG patients were interviewed for the study.ResultsInterviews showed that HGG diagnosis left patients feeling like everything was surreal. From that point on, their life was marked by loss. HGG patients sometimes felt disregarded by family caregivers, professional caregivers, and the health care system. They felt as if they were on the “sidelines” of their own life. Despite the devastating experience of living with this type of brain tumor, HGG patients also expressed great inner strength, and they tried to maintain hope. Their pivotal professional care needs concerned information, communication, and accessibility.ConclusionsDiagnosis of HGG changes life drastically. Our results highlight the need for professional caregivers to be more considerate and supportive of patients with this life-changing diagnosis. Additionally, professional caregivers need to acknowledge these patients as persons and strive to empower them in order to bolster their personal strength.

ناشر
Database: Elsevier - ScienceDirect (ساینس دایرکت)
Journal: European Journal of Oncology Nursing - Volume 19, Issue 4, August 2015, Pages 383–390
نویسندگان
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