کد مقاله کد نشریه سال انتشار مقاله انگلیسی ترجمه فارسی نسخه تمام متن
2647570 1139052 2015 8 صفحه PDF ندارد دانلود رایگان
عنوان انگلیسی مقاله
Development and evaluation of an intervention to support family caregivers of people with cancer to provide home-based care at the end of life: A feasibility study
ترجمه فارسی عنوان
توسعه و ارزیابی یک مداخله برای حمایت از مراقبان خانواده افراد مبتلا به سرطان برای ارائه مراقبت های خانگی در پایان زندگی: یک مطالعه امکان سنجی
کلمات کلیدی
مداخله؛ سرطان؛ مراقبان؛ مهارت های عملی؛ مراقبت خانه محور؛ پایان زندگی؛ مراقبت تسکینی
Intervention; Cancer; Caregivers; Practical skills; Home-based care; End of life; Palliative care
موضوعات مرتبط
علوم پزشکی و سلامت پزشکی و دندانپزشکی تومور شناسی
چکیده انگلیسی

PurposeTo design and evaluate an intervention to address carers' needs for practical information and support skills when caring for a person with cancer at end of life.MethodPhase I 29 carers were interviewed about need for practical information, support skills and their preferences for information delivery. The preferred format was a booklet. Phase 2 evaluated the booklet. 31 carers and 14 district nurses participated. Validated questionnaires: on perceptions of caregiving and carer health before and after the booklet was used and interviews with both carers and nurses were untertaken.24 carers completed both interviews. Quantitative data were coded using scale manuals and analysed using SPSSv20 and interview data was analysed thematically.ResultsCarers were aged 31–82 and cared for people aged 50–92; 8 carers were male and 23 female; 20 cared for a partner, 8 for a parent and 1 for a sibling (2 undisclosed).Carers were positive about the booklet, however many carers would have liked the booklet earlier. Carers reported feeling more positive about caregiving, and more reassured and competent in their role. District nurses found the booklet useful and reported receiving fewer phone calls from study carers than others in similar situations.ConclusionsThe booklet intervention was a source of reassurance to carers and it has the potential to be incorporated into everyday practice. The challenge is in when and how to distribute the booklet and more work is required on the timing of delivery in order to maximise the usefulness of booklet to carers.

ناشر
Database: Elsevier - ScienceDirect (ساینس دایرکت)
Journal: European Journal of Oncology Nursing - Volume 19, Issue 2, April 2015, Pages 154–161
نویسندگان
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