کد مقاله کد نشریه سال انتشار مقاله انگلیسی نسخه تمام متن
470089 698392 2010 22 صفحه PDF دانلود رایگان
عنوان انگلیسی مقاله ISI
Strategies for health data exchange for secondary, cross-institutional clinical research
موضوعات مرتبط
مهندسی و علوم پایه مهندسی کامپیوتر علوم کامپیوتر (عمومی)
پیش نمایش صفحه اول مقاله
Strategies for health data exchange for secondary, cross-institutional clinical research
چکیده انگلیسی

Secondary use of health data has a vital role in improving and advancing medical knowledge. While digital health records offer scope for facilitating the flow of data to secondary uses, it remains essential that steps are taken to respect wishes of the patient regarding secondary usage, and to ensure the privacy of the patient during secondary use scenarios. Consent, together with depersonalisation and its related concepts of anonymisation, pseudonymisation, and data minimisation are key methods used to provide this protection. This paper gives an overview of technical, practical, legal, and ethical aspects of secondary data use and discusses their implementation in the multi-institutional @neurIST research project.

ناشر
Database: Elsevier - ScienceDirect (ساینس دایرکت)
Journal: Computer Methods and Programs in Biomedicine - Volume 99, Issue 3, September 2010, Pages 230–251
نویسندگان
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