An information supply chain system view for managing rare infectious diseases: The need to improve timeliness

Timely reporting of rare infectious disease cases to the public health system, especially after identification at laboratories, is essential to initiate quick and effective public health response. To ensure that the public health reporting system is appropriately monitoring the rare infectious diseases under surveillance, it is recommended to have a regular assessment of timeliness, especially after the rare infectious case is confirmed. This study aimed to evaluate the timeliness of data reported to the Ohio Disease Reporting System (ODRS), a public health reporting system in Ohio, for managing rare infectious diseases. In a cross-sectional analysis of rare infectious disease reporting data in four local health jurisdictions (LHJs) in the state of Ohio, wide delays were found between various reporting steps, particularly when the laboratories were not using the electronic method of reporting, and the delay observed was mainly at the hospital level and at the LHJ level. This study highlights the supply chain nature of information transfer and calculates the delay at various interacting points of the information supply chain system. The results establish that a centralized approach with an electronic disease reporting system conveys information faster than traditional reporting channels (decentralized approach). Delays of the decentralized approach are isolated at various stakeholder levels and with respect to various types of rare infectious diseases for better understanding of the information supply chain system for managing rare infectious diseases.