کد مقاله کد نشریه سال انتشار مقاله انگلیسی ترجمه فارسی نسخه تمام متن
2665578 1140705 2016 8 صفحه PDF سفارش دهید دانلود کنید
عنوان انگلیسی مقاله ISI
Parent Recommendations for Family Functioning With Prader–Willi Syndrome: A Rare Genetic Cause of Childhood Obesity
ترجمه فارسی عنوان
توصیه های والدین برای عملکرد خانوادگی با سندرم Prader-Willi: یک علت ژنتیکی نادر از چاقی دوران کودکی
کلمات کلیدی
سندرم Prader-Willi، ژنتیک؛ چاقی دوران کودکی؛ عملکرد خانوادگی؛ تحقیقات پرستاری کیفی
موضوعات مرتبط
علوم پزشکی و سلامت پزشکی و دندانپزشکی پریناتولوژی (پزشکی مادر و جنین)، طب اطفال و بهداشت کودک
چکیده انگلیسی

PurposePrader–Willi syndrome (PWS) is the most common genetic cause of childhood obesity. Neonates have hypotonia and may fail to growth and develop. Within a few years, behavioral problems occur along with insatiable hunger (hyperphagia) and the potential for excessive weight gain. The purpose of this study was to identify how families function when they have a child with PWS.Design and MethodsThis qualitative descriptive study was based on 20 face-to-face, audio-taped interviews with parents. They were asked to identify family responses to PWS and offer recommendations. Data were transcribed, coded and analyzed for commonalities and themes.ResultsThere were twelve identified themes with two overarching themes of 1) taking action and 2) caring for oneself and family. Taking action was focused on achieving what was best for the child with PWS. Caring for oneself and family attempted to assure that all in the family were healthy, content, and living a fulfilling life under their circumstances.ConclusionsThis study revealed parental insight as to how they learned to creatively cope with a stressful family life. There was a recognition of inevitable sacrifice and the need for changes in expectations so as to help the child with PWS flourish while also focusing on the needs of all the members of the family.Practice ImplicationsNursing and health care providers should be aware of these issues in the provision of anticipatory guidance to families contending with this genetic disorder.

ناشر
Database: Elsevier - ScienceDirect (ساینس دایرکت)
Journal: Journal of Pediatric Nursing - Volume 31, Issue 1, January–February 2016, Pages 47–54
نویسندگان
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