Informed consent process for patient participation in rare disease registries linked to biorepositories

Informed consent process for patient participation in rare disease registries linked to biorepositories

Database: Elsevier - ScienceDirect (ساینس دایرکت)
Journal: Contemporary Clinical Trials - Volume 33, Issue 1, January 2012, Pages 5-11

Yaffa R. Rubinstein, Stephen C. Groft, Sara Hull Chandros, Julie Kaneshiro, Barbara Karp, Nicole C. Lockhart, Patricia A. Marshall, Richard T. III, Geraldine B. Pollen, Vanessa Rangel Miller, Jack Schwartz,