Forgone care among chronically ill patients in Germany—Results from a cross-sectional survey with 15,565 individuals

• Forgone care among chronically ill in Germany was assessed in October 2013.
• 14.1% of 15,565 surveyed chronically ill reported forgone care.
• Perceived discrimination, older age and poor subjective health are predictors of forgone care.
• The strongest predictor of forgone care is perceived discrimination (OR: 4.67, p < 0.001).

The decision not to seek health care although one feels that care is needed (forgone care), is influenced by various factors. Within the study “Responsiveness in ambulatory care” 15,565 chronically ill (coronary heart disease and/or type 2 diabetes) patients in Germany were surveyed in 2013. The survey included questions on forgone care, perceived discrimination when seeking care, net-income, subjective health status and subjective socioeconomic status (subSES). Survey data were linked on patient-level with administrative claims data by a German sickness fund. We applied multivariate binomial logistic regression analyses to assess the association between age, sex, comorbidities, living area, subjective health status, subSES, experienced discrimination, net-equivalent income and reported forgone care. The majority in the sample are men (71.4%), the average age is 69.4 (SD: 10.2) years and 14.1% reported forgone care. In the multivariate model, we find that younger age, female gender, perceived discrimination, depression, and a poor subjective health status increase the odds of reporting forgone care. Overall, our results suggest that a negative experience with the health care system, i.e. perceived discrimination/unfair treatment, are strong predictors of forgone care among the chronically ill.