کد مقاله | کد نشریه | سال انتشار | مقاله انگلیسی | نسخه تمام متن |
---|---|---|---|---|
5601729 | 1405358 | 2017 | 5 صفحه PDF | دانلود رایگان |
عنوان انگلیسی مقاله ISI
Parenting a child with metabolic diseases: Impact on health related quality of life of parents
ترجمه فارسی عنوان
والدین یک کودک مبتلا به بیماری های متابولیکی: تاثیر کیفیت زندگی والدین بر سلامتی
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کلمات کلیدی
والدین، کودک مبتلا به بیماری متابولیکی، کیفیت زندگی مرتبط با سلامت،
موضوعات مرتبط
علوم پزشکی و سلامت
پزشکی و دندانپزشکی
کاردیولوژی و پزشکی قلب و عروق
چکیده انگلیسی
The study was conducted to assess the health related quality of life of the parents of children with inborn errors of metabolism (IEM). The study was conducted at the Genetic and metabolic outpatient department of Sultan Qaboos University Hospital, Oman. The parents of children with metabolic diseases who were accompanying their children to the outpatient clinics were the samples. An explorative descriptive survey design and Convenient sampling technique were used to select the sample. Study included 72 parents of children with metabolic diseases aged between 20 and 55 years. The RAND 36-Item Health Survey version was used to assess the health related quality of life of parents. The results shows lower mean scores in subscales of 'general health' and vitality. Parents with higher educational levels showed higher levels of PCS and MCS scores than parents with lower educational levels. Parents with higher monthly income and younger age showed higher quality of life. A significant association was found between supporting persons and HQoL in the dimensions of the “role limitations due to physical” (p < 0.03), and social functioning (p < 0.04). Empowering the parents by helping them to actively seek and maintain social support is an important step in improving the health related quality of life.
ناشر
Database: Elsevier - ScienceDirect (ساینس دایرکت)
Journal: Diabetes & Metabolic Syndrome: Clinical Research & Reviews - Volume 11, Issue 1, JanuaryâMarch 2017, Pages 25-29
Journal: Diabetes & Metabolic Syndrome: Clinical Research & Reviews - Volume 11, Issue 1, JanuaryâMarch 2017, Pages 25-29
نویسندگان
Deepa (Lecturer), Lina (Clinical Instructor), Kannekanty (Lecturer), Judie (Assistant Professor),