کد مقاله کد نشریه سال انتشار مقاله انگلیسی نسخه تمام متن
5868113 1138340 2015 4 صفحه PDF دانلود رایگان
عنوان انگلیسی مقاله ISI
Implementation challenges in end-of-life research with adults with intellectual and developmental disabilities
ترجمه فارسی عنوان
چالش های اجرایی در تحقیق در پایان زندگی با بزرگسالان با معلولیت های فکری و رشد
کلمات کلیدی
موضوعات مرتبط
علوم پزشکی و سلامت پرستاری و مشاغل بهداشتی پرستاری
چکیده انگلیسی
Although the 4 million + people in the U.S. with an intellectual or developmental disability (I/DD) experience the same life expectancy as those in the general population, end-of-life research including these individuals is lacking and can be difficult to implement. As will be described in this paper, it is possible to overcome barriers to successfully include people with I/DD in end-of-life research. In this paper, the implementation challenges, feasibility, and implications for successful end-of-life research with individuals with I/DD using focus groups are described. Individuals with I/DD were able to discuss their experiences and views about end-of-life care. However, while people with I/DD made valuable contributions to the focus groups, there were several modifications needed in order to execute this study. In order to gain a complete picture of end-of-life care for people with I/DD, it is imperative to include them in research to the best of their ability. By anticipating issues related to recruitment, the consent process, setting, and support needs of participants, focus groups can be successfully implemented.
ناشر
Database: Elsevier - ScienceDirect (ساینس دایرکت)
Journal: Applied Nursing Research - Volume 28, Issue 2, May 2015, Pages 202-205
نویسندگان
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