Parcours de soins du patient adulte souffrant de syndrome de grêle court avec insuffisance intestinale

The short bowel syndrome is a rare disease with complex care requiring a multidisciplinary approach in which actors can change depending on the stage of the disease. Thus, we distinguish the adult patient's coordinated healthcare circuit after large bowel resection from the initial phase to the stable stage including the patient care at home. At the stage of chronic intestinal failure, the support is usually coordinated by approved home parenteral nutrition (HPN) centers. Today, with the development of new drugs as intestinal trophic factors such as GLP2 agonist, it becomes essential and urgent to define the coordinated healthcare circuit of these patients in the French territory. The role of the historical HPN approved centers, the newly certified expert centers for the management of long-term parenteral nutrition and the reference centers for rare diseases will have to be defined.