Factors influencing health data sharing preferences of consumers: A critical review

The purpose of this critical review is to synthesize available literature and identify factors influencing consumer data sharing preferences, while presenting a logic model for legal / public policy development that aligns with consumer expectations for management of ePHI. Eighteen articles were included for the critical review; including 16 studies from three countries. The fourteen cross-sectional studies were evaluated using Olsen and St. George׳s (2004) Cross-sectional Study Design and Data Analysis framework and two qualitative studies were assessed using Kuper, Lingard, & Levinson (2008) [14] Critically Appraising Qualitative Research strategies. An emerging classification schema of statistically significant factors identified in this critical review shows that, (1) Trust relationship, (2) Harm Threshold, (3) Balance Risk and Benefits, (4) Transparency of Data Exchange and (5) Access and Control of Data are important when considering how to best include the consumer voice in the development of legal / public policies related to the privacy, security and consent management of ePHI.