Children's voices: qualitative data from the 'Barretstown studies'

This paper describes the experiences of children (7-16 years) affected by life-threatening illness, attending a therapeutic recreation programme. In total, 240 children completed self-report questionnaires prior to the programme, with decreased response rates at follow-up. This paper focuses on children's responses to open-ended questions. The main findings showed that children's expectations focused on the activities and social interactions they were looking forward to, while some were concerned about being away from home. Also two-thirds felt that they had acquired personal and social functioning skills. These findings are discussed in relation to the value of qualitatively accessing children's views and experiences.